As you all know, my friend Dr. Beth of Not To Be Trusted With Knives is awesome. And not just a little bit awesome, or awesome part of the time. She’s awesome all of the time, and on a level that most people only wish to attain. Truly. She’s really that awesome.
As evidence to this level of awesomeness that I have claimed, I provide the following: Dr. Beth has recently signed up to play in the Longest Game of Hockey to raise money for Cystic Fibrosis Canada. And how long is the Longest Game of Hockey? Great question. The Longest Game of Hockey will last more than 10 days. And I don’t mean that Dr. Beth will be spending a few hours every day playing hockey. No, no, no. Awesome doesn’t do things in a simple or half-assed manner. Nope, she will be playing hockey 24 hours a day, for more than 10 solid days. That’s 242+ hours of skating, puck handling, line changes, and any other thing that hockey people do while playing hockey. Insane? Yes. Awesome? Hells yes.
Of course, she won’t be skating the entire time. She is permitted to stop to sleep, eat, drink, and suchlike. But, she will be required to stay at the arena the entire time. But doesn’t she work? you ask. Damn straight she does. Dr. Beth has opted to use some of her well-earned vacation to participate in this event. How freaking amazingly awesome can one person be?
Anyway, I am posting this because I was watching a YouTube video (see below) that she had posted on her blog. It was unbelievably moving, inspirational, and ultimately devastating. It describes the life of a young woman (Eva Markvoort) who eventually succumbed to the disease waiting for a second lung transplant. Clearly, research dollars are required. And that is where you, dear reader, come in. I am once again going to ask you to donate to a most amazing cause. Click here to go to Dr. Beth’s personal donation page and contribute whatever you can.
In honour of Mathematics Awareness Month, I leave you with statistics about Cystic Fibrosis. These do not paint a pretty picture about this disease (although the improved lifespan offers so much hope), and obviously speak to the need for further research and a cure. All of this information comes directly from the Cystic Fibrosis Canada website.
Did you know…
- one in every 3,600 children born in Canada has cystic fibrosis
- 60% of people with cystic fibrosis are diagnosed in the first year of life, and 90% by age 10
- 3,800 children, adolescents and adults attend specialized cystic fibrosis clinics
- one in 25 Canadians carries a defective version of the gene responsible for cystic fibrosis
- more than 50% of people with CF carry two copies of the most common cystic fibrosis mutation, ΔF508
- more than 85% of all people with cystic fibrosis carry at least one copy of ΔF508
- there are over 1,800 mutations in the gene responsible for CF
- in the 1960s, most children with cystic fibrosis did not live long enough to attend kindergarten
- today, half of all Canadians with cystic fibrosis are expected to live into their 40s and beyond
- the number of Canadian adults with cystic fibrosis (aged 18+) surpasses the number of children with CF